Hemophilia affects 1 in every 10,000 births

On April 16, the First Lady of Ecuador, Lavinia Valbonesi, visited the Ecuadorian Hemophilic Foundation (FUNDHEC), on the occasion of the commemoration of World Hemophilia Day. During this event, the commitment of public and private companies to the health of Ecuadorians.

José Garnica, Undersecretary of Health, highlighted the national government’s commitment to promoting quality health services, comprehensive care and support for hemophilia patients. Speaking from the private sector, Nicolás Villar, general manager of the pharmaceutical company Roche, emphasized the importance of allowing affected children to lead as normal a life as possible, despite the disease, and mentioned the need to avoid physical activities that may pose risks to your health, such as contact sports.

Hemophilia, an X-linked hereditary disease, is transmitted by female carriers and suffered by men due to an alteration in the F8 or F9 genes that produce coagulation factors VIII and IX. It affects 1 in every 10,000 births and is not contagious. 

During the event, the importance of educating the population about this disease was highlighted. The First Lady interacted with the little patients, closely understanding their challenges and showing her unwavering support towards them and their families.

Some mothers who attend the foundation with their children shared testimonies about how it is necessary to have innovative treatments that contribute and improve the quality of life of their children. The presence of public and private sector authorities highlights the commitment to society to provide treatments that can help improve the quality of life of those living with hemophilia.